LUPUS AWARENESS MONTH
In honor of Lupus Awareness Month, the Lupus Foundation of America released a new survey they recently commissioned which reveals the need for better public understanding of this devastating autoimmune disease and why early diagnosis is so important.
According to the Lupus Foundation of America, the results of the survey show “while lupus affects an estimated 1.5 million people in the U.S. alone, 63% of Americans surveyed have never heard of or know little or nothing about this disease that has no cure. The survey sample was designed to be reflective of the U.S. population’s diverse demographics. Women of color are at two to three times greater risk for developing lupus than Caucasian women. However, over half of respondents (62%) didn’t recognize that minority populations were disproportionately impacted by lupus.
Minority women tend to develop lupus at a younger age, experiencing more serious complications and have higher mortality rates. This was reflected among minority respondents who indicated they were also more worried about developing the disease than others surveyed: 44% compared to 29% of the sample overall.
While it was promising that a significant percentage of Hispanics and African Americans surveyed indicated they were either very familiar or somewhat familiar with lupus, including 43% of Hispanic respondents and 54% of African American respondents, there are still considerable gaps in the understanding of lupus signs and symptoms which are crucial for early diagnosis.
To address this, the Foundation has an ongoing national lupus awareness and education campaign, Be Fierce. Take Control® that aims to raise awareness of the signs and symptoms of lupus among Latino and African American women ages 18 – 25: a population at higher risk for the disease.” For more information visit www.lupus.org
Founded in 1977, The Black Women’s Agenda, Inc. is a national organization with a mission of educating and protecting the rights of African American women and their families, and represents more than 3 million women.
This Open Letter is being sent in support of women throughout the United States and the World. We understand the importance of recognizing the “person-hood” of women and their complete dominion over their bodies, including matters of pregnancy and reproductive health.
On March 8, 2019, the 116th U.S House of Representatives passed the historic For the People Act of 2019 (HR 1), also known as “The Restoring Our Democracy” bill. Introduced by Representative John Sarbanes (D-MD) on January 3, 2019 and co-sponsored by 236 House members, HR 1 is a comprehensive bill that expands voter registration and voting access, makes Election Day a national holiday, and limits removing voters from voter rolls. Further, to guard against unjust gerrymandering, the bill provides for states to establish independent nonpartisan redistricting commissions. The bill is organized in three Divisions: A: Voting, B: Campaign Finance and C: Ethics.
On Saturday, May 18, 2019, The Black Women’s Agenda, Inc. (BWA) hosted faith leaders, activists, elected officials, journalists, and a multicultural audience from across the political spectrum today for Spirit of Change, a frank and expansive town hall conversation, moderated by ABC News Anchor and Correspondent T.J. Holmes, on some of the nation’s most pressing issues, at Washington National Cathedral in the nation’s capital.