LUPUS AWARENESS MONTH

In honor of Lupus Awareness Month, the Lupus Foundation of America released a new survey they recently commissioned which reveals the need for better public understanding of this devastating autoimmune disease and why early diagnosis is so important. 

According to the Lupus Foundation of America, the results of the survey show “while lupus affects an estimated 1.5 million people in the U.S. alone, 63% of Americans surveyed have never heard of or know little or nothing about this disease that has no cure. The survey sample was designed to be reflective of the U.S. population’s diverse demographics. Women of color are at two to three times greater risk for developing lupus than Caucasian women. However, over half of respondents (62%) didn’t recognize that minority populations were disproportionately impacted by lupus.

Minority women tend to develop lupus at a younger age, experiencing more serious complications and have higher mortality rates. This was reflected among minority respondents who indicated they were also more worried about developing the disease than others surveyed: 44% compared to 29% of the sample overall.

While it was promising that a significant percentage of Hispanics and African Americans surveyed indicated they were either very familiar or somewhat familiar with lupus, including 43% of Hispanic respondents and 54% of African American respondents, there are still considerable gaps in the understanding of lupus signs and symptoms which are crucial for early diagnosis. 

To address this, the Foundation has an ongoing national lupus awareness and education campaign, Be Fierce. Take Control® that aims to raise awareness of the signs and symptoms of lupus among Latino and African American women ages 18 – 25: a population at higher risk for the disease.”  For more information visit www.lupus.org

 

OTHER NEWS

THE CREDIT FOR CARING ACT: What You Need to Know

On May 17, 2017, this bi-partisan proposed bill introduced in the U.S. House and Senate called the Credit for Caring Act, (S.1151/H.R. 2505) would amend the Internal Revenue Code to create a federal, nonrefundable tax credit of up to $3,000 for family caregivers who work while also financially help and assist in caring for their parents, spouses, children with disabilities or other loved ones. Introduced by Senators Joni Ernst (R-IA), Michael Bennet (D-CO), Shelley Moore Capito (R-WV) and Elizabeth Warren (D-MA), and Representatives Tom Reed (R-NY) and Linda Sánchez (D-CA), this bill is an important step toward supporting caregivers…

EDUCATION ISSUE H.R. 610: What You Need to Know

On January 23, 2017 Representative Steve King of Iowa introduced H.R.610 – a bill that would distribute Federal funds for elementary and secondary education in the form of vouchers for eligible students and to repeal a certain rule relating to nutrition standards in schools.
This bill threatens funding to public schools and equal opportunity in education. This bill is designed to take federal funds from public schools by dismantling Block Grants programs and other programs that are in place to assist communities of color.

AWARENESS & ACTION: THE BLACK WOMEN’S AGENDA, INC. HOSTS 39TH ANNUAL SYMPOSIUM WORKSHOP & AWARDS LUNCHEON

WASHINGTON, DC – The Black Women’s Agenda, Inc. (BWA) recently hosted its 39th Annual Symposium Workshop & Awards Luncheon, honoring the achievements of five women and encouraging the more than 1,200 attendees to exert their influence in areas of critical importance to their communities. The organization also welcomed Democratic Presidential Nominee Hillary Rodham Clinton, who addressed participants in the morning workshop.

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